Table 1 Questionnaire measures
From: Association between genomic recurrence risk and well-being among breast cancer patients
Predictor variables | No. of items (response scale) | α* | Mean (SD) | Item wording (translated from Dutch) |
|---|---|---|---|---|
Perceived understanding | 5 items (4-point scale) | 0.81 | 2.89 (0.42) | Did you find the verbal information clear? |
Did you find the written information clear? | ||||
Did you find the information prior to the test clear? | ||||
Did you find the information about handling the results clear? | ||||
Did you find the total information clear, for making a careful decision? | ||||
Results received at the same visit | 1 item (Yes/no) | NA | Did you receive the test results on one occasion? | |
Knowledge | 14 items (Yes, no, DK) | 75% (0.17) | See Table 3 | |
Risk perception | 1 item (0-100%) | NA | What do you think is the chance your cancer will come in the coming 10 years? | |
Satisfaction | 5 items (5-point scale) | 0.78 | 2.06 (0.65) | How satisfied were you with the total medical care for breast cancer; with the time you had to wait for the test results; the total information provided; the way the results were conveyed; communication with the medical and nursing staff. |
Outcomes | ||||
Distress | 10 items (4-point scale; a little, some, very, a lot) | 0.91 | 1.99 (0.79) | How did you feel when your doctor told you the [genomic] test results? relieved, glad, disappointed; sad; surprised; confused; upset; insecure; angry; helpless; anxious; guilty; sombre. |
Cancer-specific worry | 7 items (4-point scale) | 0.89 | 1.79 (0.58) | During the last 4 weeks: how often have you thought about getting cancer again; how often do you worry about getting metastasis; needing chemotherapy again; did this affect your mood? |
Quality of life | 9 items (5 point scale) | 0.63 | 26.44 (5.11) | Breast cancer subscale of the FACT-B |