From: The development of a supportive care needs assessment tool for Indigenous people with cancer
Original item | Final items in SCNAT-IP | |
---|---|---|
1 | Pain | Physical pain (e.g., hurt) |
2 | Lack of energy/tiredness | Feeling tired (e.g., sleeping ok) |
3 | Feeling unwell a lot of the time | Not feeling well (e.g., feeling rotten, crook or sick) a lot of the time |
4 | Work around the home | Work around the home (e.g., washing, cooking, raking the yard, sweeping the floor) |
5 | Not being able to do the things you used to do | Doing the things you used to do (e.g., fishing, walking, seeing family) |
6 | Anxiety | Anxiety (e.g., worrying, fear, concern) |
7 | Feeling down or depressed | Feeling down or sad |
8 | Feeling of sadness | |
9 | Fears about the cancer spreading | Worrying about your illness spreading or getting worse |
10 | Worry that the results of treatment are beyond your control | Worry about the results of the treatment |
11 | Uncertainty about the future | |
12 | Learning to feel in control of your situation | |
13 | Keeping a positive outlook | Keeping you strong in your spirit (e.g., staying positive) |
14 | Feelings about death and dying | |
15 | Changes in sexual feelings | Changes in sexual feelings (optional question) |
16 | Changes in your sexual relationships | |
17 | Concerns about the worries of those close to you | Concerns about the worries of those close to you (e.g., family and friends) |
18 | More choice about which cancer specialists you see | |
19 | More choice about which hospital you attend | Having choice about which hospital you attend |
20 | Reassurance by medical staff that the way you feel is normal | Support by staff that the way you feel is natural (e.g., common, typical) |
21 | Hospital staff attending promptly to your physical needs | Having hospital staff attending quickly to your physical needs (e.g., if you needed assistance getting out of bed) |
22 | Hospital staff acknowledging, and showing sensitivity to, your feelings and emotional needs | Having hospital staff show sensitivity to and respecting your feelings and emotional needs |
23 | Being given written information about the important aspects of your care | Being shown or given information (e.g., written, diagrams) about how to manage your treatment, illness and side-effects in hospital |
24 | Being given information (written, diagrams, drawings) about aspects of managing your illness and side-effects at home | Being shown or given information (e.g., written, diagrams) about how to manage your illness and side-effects at home |
25 | Being given explanations of those tests for which you would like explanations | Explaining what tests are for |
26 | Being adequately informed about the benefits and side –effects of treatments before you chose to have them | Understanding the good and bad effects of treatments before you chose to have them (e.g., having someone explain these to you) |
27 | Being informed about your test results as soon as feasible | Being told about your test results as soon as possible |
28 | Being informed about cancer which is under control or diminishing (that is, remission) | Being told about whether your cancer is in remission (e.g., fading or finishing) |
29 | Being informed about things you can do to help yourself get well | Being told about things you can do to help yourself get well (e.g., safe exercises, what you eat) |
30 | Having access to professional counselling (e.g. psychologist, social worker, counsellor, nurse specialist) if you, family or friends need it | Having access to professional counselling (e.g., psychologist, social worker, Aboriginal Liaison Officer) if you or family and friends need it |
31 | To be given information about sexual relationships | To be given information about sexual relationships (optional question) |
32 | Being treated like a person not just another case | Being treated like a person not just another case or a number |
33 | Being treated in a hospital or clinic that is as physically pleasant as possible | |
34 | Having one member of hospital staff with whom you can talk to about all aspects of your condition, treatment and follow-up | Having one hospital person you can talk to about your condition, treatment and follow-up |