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Table 1 The original SCNS-SF34 items and wording changes included in the SCNAT-IP

From: The development of a supportive care needs assessment tool for Indigenous people with cancer

 

Original item

Final items in SCNAT-IP

1

Pain

Physical pain (e.g., hurt)

2

Lack of energy/tiredness

Feeling tired (e.g., sleeping ok)

3

Feeling unwell a lot of the time

Not feeling well (e.g., feeling rotten, crook or sick) a lot of the time

4

Work around the home

Work around the home (e.g., washing, cooking, raking the yard, sweeping the floor)

5

Not being able to do the things you used to do

Doing the things you used to do (e.g., fishing, walking, seeing family)

6

Anxiety

Anxiety (e.g., worrying, fear, concern)

7

Feeling down or depressed

Feeling down or sad

8

Feeling of sadness

 

9

Fears about the cancer spreading

Worrying about your illness spreading or getting worse

10

Worry that the results of treatment are beyond your control

Worry about the results of the treatment

11

Uncertainty about the future

 

12

Learning to feel in control of your situation

 

13

Keeping a positive outlook

Keeping you strong in your spirit (e.g., staying positive)

14

Feelings about death and dying

 

15

Changes in sexual feelings

Changes in sexual feelings (optional question)

16

Changes in your sexual relationships

 

17

Concerns about the worries of those close to you

Concerns about the worries of those close to you (e.g., family and friends)

18

More choice about which cancer specialists you see

 

19

More choice about which hospital you attend

Having choice about which hospital you attend

20

Reassurance by medical staff that the way you feel is normal

Support by staff that the way you feel is natural (e.g., common, typical)

21

Hospital staff attending promptly to your physical needs

Having hospital staff attending quickly to your physical needs (e.g., if you needed assistance getting out of bed)

22

Hospital staff acknowledging, and showing sensitivity to, your feelings and emotional needs

Having hospital staff show sensitivity to and respecting your feelings and emotional needs

23

Being given written information about the important aspects of your care

Being shown or given information (e.g., written, diagrams) about how to manage your treatment, illness and side-effects in hospital

24

Being given information (written, diagrams, drawings) about aspects of managing your illness and side-effects at home

Being shown or given information (e.g., written, diagrams) about how to manage your illness and side-effects at home

25

Being given explanations of those tests for which you would like explanations

Explaining what tests are for

26

Being adequately informed about the benefits and side –effects of treatments before you chose to have them

Understanding the good and bad effects of treatments before you chose to have them (e.g., having someone explain these to you)

27

Being informed about your test results as soon as feasible

Being told about your test results as soon as possible

28

Being informed about cancer which is under control or diminishing (that is, remission)

Being told about whether your cancer is in remission (e.g., fading or finishing)

29

Being informed about things you can do to help yourself get well

Being told about things you can do to help yourself get well (e.g., safe exercises, what you eat)

30

Having access to professional counselling (e.g. psychologist, social worker, counsellor, nurse specialist) if you, family or friends need it

Having access to professional counselling (e.g., psychologist, social worker, Aboriginal Liaison Officer) if you or family and friends need it

31

To be given information about sexual relationships

To be given information about sexual relationships (optional question)

32

Being treated like a person not just another case

Being treated like a person not just another case or a number

33

Being treated in a hospital or clinic that is as physically pleasant as possible

 

34

Having one member of hospital staff with whom you can talk to about all aspects of your condition, treatment and follow-up

Having one hospital person you can talk to about your condition, treatment and follow-up